What value is there in continuous testing and assessing of disabled people?

Last year when it became obvious this government were not going to move on its closure programme of the Independent Living Fund (ILF) along with thousands of other ILF recipients I grimly realized that my life could be turned upside down.

However, I was quite relieved when at my care package review in April that my LA agreed to join my ILF payments with the LA budget. In fact, due in part to my campaigning Lambeth pledged to continue paying ILF budgets at their current level to all 43 recipients in the borough.

Though happy at the time, I was still very much aware that in 12 months I would be receiving another review; and that in all likelihood this review would seek ways to cut back my social care and support package.

People in receipt of social care and support packages undergo two sets of assessments or reviews each year. The first is a needs assessment. This process identifies care and support needs; and it then seeks outcomes to these needs. The second assessment is a financial process. This checks income and savings in order to determine whether the service user makes a contribution to their care or if they are ‘zero rated’. These assessments take place annually.

Yesterday I received a call from a social worker who introduced herself and went on to explain her role; and she then asked when we could meet to carry out the annual review of my care package.

ME: “In April, that’s when my annual review is due.”

SW: “You don’t understand I need to see if your needs have changed before April.”

ME: “Yes, I do understand the function of an annual needs assessment, or in this case annual needs review, it is to determine whether my needs are being met by my current care package. Or most likely where you can make cuts…”

SW: “Mr McGovern, we are obliged by law to carry out a review annually.”

ME: “Yes, I agree. Call me back in April when I’m due the review, not nine months into the annual period.

Let me explain something to you. As a disabled person I’m sick and tired of being continually tested, reviewed and assessed for this benefit or that service. If it isn’t my care package being reviewed it was ILF, or my Blue Badge, or Access to Work, or the Freedom Pass, or TaxiCard, or, when my time comes, being taken off DLA and having to apply for PIP.

This is besides routine GP appointments to monitor diabetes, visiting the asthma clinic and the respiratory nurse for spirometer tests, periodically attending hospital for neuro-physio, having US tests on my testes and going for CAT scans to monitor a benign growth on my left lung, and now, realizing that I’ve been suffering from depression for the past few months and having to arrange for a course of consultations to prop up my mental health.

A depression brought about by the uncertainty of my health coupled to real chance of me losing both benefits and services as a result of the vicious austerity cuts going on around me.

SW: “OK Mr McGovern. Maybe I’ll call back in April…”

PLEASE FUCK OFF AND LEAVE ME ALONE!

    

If you want something done go straight to the top!

My, newish, wet room is working a treat; and on the whole I'm very pleased with the work carried out, particularly the standard. The fact that I managed to get away for two weeks while the works were being carried out meant I was unable to point out to the contractor a few areas of snagging; and to upbraid him on leaving an electrical fitting exposed - in my view a potential H&S hazard.

 Midway into November last year I'd still not heard from the contractor. Nor indeed had the work been signed-off. So I contacted my landlord's agent, the  company that was dealing with the building works and arranged for the care and repair technical officer to visit me.

The technical officer came and took notes and photographs of the works. Before leaving she assured me the contractor would be in touch soon to arrange for the snagging to be carried out. 

Then....nothing. 

No call from the contractor no word from the agent. An email from me on 18th December galvanised a response from the technical officer promising to contact me on 21st December. 

Then....again nothing.

So this afternoon at 15.41 I emailed the CEO of NHHG asking was it the practice of her organisation to spend in excess of £12,000 on a wet room without the works being signed-off. 

At 16.14 my phone rang and it was the contractor tripping over his tongue with apologies and chucking dates at me to come and finish the works. Surprising where a bit of initiative gets you.